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Development and validation of a simple tool for the assessment of home noninvasive ventilation: the S3-NIV questionnaire.

  • Dupuis-Lozeron E Division of Clinical Epidemiology, Geneva University Hospitals, Geneva, Switzerland.
  • Gex G Division of Lung Diseases, Hôpital du Valais, Sion, Switzerland.
  • Pasquina P Division of Lung Diseases, Geneva University Hospitals, Geneva, Switzerland.
  • Bridevaux PO Division of Lung Diseases, Hôpital du Valais, Sion, Switzerland.
  • Borel JC AGIR à dom, Grenoble, France.
  • Soccal PM Division of Lung Diseases, Geneva University Hospitals, Geneva, Switzerland.
  • Windisch W Cologne Merheim Hospital, Dept of Pneumology, Kliniken der Stadt Köln, Cologne, Germany.
  • Pépin JL HP2 Laboratory, Inserm U1042 Unit, Grenoble Alps University, Grenoble, France.
  • Janssens JP Division of Lung Diseases, Geneva University Hospitals, Geneva, Switzerland.
  • Adler D Division of Lung Diseases, Geneva University Hospitals, Geneva, Switzerland.
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  • 2018-09-29
Published in:
  • The European respiratory journal. - 2018
Adult
Aged
Female
France
Health Status
Home Care Services
Humans
Male
Middle Aged
Noninvasive Ventilation
Obesity Hypoventilation Syndrome
Patient Outcome Assessment
Pulmonary Disease, Chronic Obstructive
Sleep
Sleep Apnea Syndromes
Surveys and Questionnaires
English Patient-centred outcomes are significantly modified by long-term home noninvasive ventilation (NIV), but a short, self-administered, specific tool for routine clinical assessment is lacking. The aim of this study was to develop and validate the S3-NIV questionnaire, a short questionnaire to measure respiratory symptoms, sleep quality and NIV-related side effects.Patients with stable disease who were under long-term home NIV were recruited from three outpatient NIV services. Questionnaire development consisted of a selection of core items for analysis, followed by item reduction, validation and test-retest reliability.338 patients completed a 22-item questionnaire. 11 items were removed because of non-scalability (n=2), redundancy (n=8) and lack of fit (n=1). The final version of the S3-NIV questionnaire consisted of 11 items covering two dimensions: "respiratory symptoms" (Cronbach's α=0.84) and "sleep & NIV-related side effects" (Cronbach's α=0.77). Convergent validity was high between the "respiratory symptoms" subscale of the S3-NIV questionnaire and the St George's Respiratory Questionnaire (rho= -0.76, p<0.001), and between the "sleep & NIV-related side effects" subscale and the Quebec Sleep Questionnaire (rho=0.51, p<0.001). The S3-NIV questionnaire had good test--retest reliability after 4 weeks (intraclass correlation coefficient=0.72).The S3-NIV questionnaire is a short, valid and repeatable self-completed tool for the routine clinical assessment of patients undergoing home NIV.
Language
  • English
Open access status
bronze
Identifiers
Persistent URL
https://sonar.ch/global/documents/138022
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