Journal article
Family experiences of hospital end-of-life care in Switzerland: an interpretive phenomenological study.
- Spichiger E Institute of Nursing Science, University of Basel, Switzerland. Elisabeth.spichiger@unibas.ch
- 2009-08-04
Published in:
- International journal of palliative nursing. - 2009
Adult
Aged
Aged, 80 and over
Attitude of Health Personnel
Attitude to Health
Empathy
Family
Female
Humans
Male
Middle Aged
Nurse's Role
Nursing Methodology Research
Nursing Staff, Hospital
Patient Advocacy
Professional-Family Relations
Qualitative Research
Stress, Psychological
Surveys and Questionnaires
Switzerland
Terminal Care
English
AIM
Experiences of family members of terminally ill patients with hospital end-of-life care were explored. The study is part of a larger study that investigated patients' and families' experiences; this study describes family members' unique experiences.
DESIGN
A qualitative method, interpretive phenomenology, was used.
SAMPLE AND SETTING
Ten closest family members of patients were recruited in one Swiss tertiary care hospital.
METHODS
Data were mainly collected through interviews with family members.
FINDINGS
Family members suffered greatly when they witnessed patients' suffering. They experienced different approaches by professionals: non-recognition; a rather passive but welcoming attitude; active care for the family. The patient's wellbeing had priority for families; they cared for patients by providing company and being advocates or becoming co-caregivers. Family members experienced consequences of accompanying a terminally ill patient: they felt exhausted and their everyday taken-for-granted world was changed. Caring for the patient had become the only priority.
CONCLUSION
Nurses can best improve families' experiences of hospital end-of-life care when they are aware of families' priorities and take excellent care of the patient first, but, in addition, recognize family members, approach them actively and integrate them as co-caregivers as much as wished by patient and family member.
Experiences of family members of terminally ill patients with hospital end-of-life care were explored. The study is part of a larger study that investigated patients' and families' experiences; this study describes family members' unique experiences.
DESIGN
A qualitative method, interpretive phenomenology, was used.
SAMPLE AND SETTING
Ten closest family members of patients were recruited in one Swiss tertiary care hospital.
METHODS
Data were mainly collected through interviews with family members.
FINDINGS
Family members suffered greatly when they witnessed patients' suffering. They experienced different approaches by professionals: non-recognition; a rather passive but welcoming attitude; active care for the family. The patient's wellbeing had priority for families; they cared for patients by providing company and being advocates or becoming co-caregivers. Family members experienced consequences of accompanying a terminally ill patient: they felt exhausted and their everyday taken-for-granted world was changed. Caring for the patient had become the only priority.
CONCLUSION
Nurses can best improve families' experiences of hospital end-of-life care when they are aware of families' priorities and take excellent care of the patient first, but, in addition, recognize family members, approach them actively and integrate them as co-caregivers as much as wished by patient and family member.
- Language
-
- English
- Open access status
- closed
- Identifiers
-
- DOI 10.12968/ijpn.2009.15.7.43423
- PMID 19648848
- Persistent URL
- https://sonar.ch/global/documents/197441
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