Towards standardized patient reported physical function outcome reporting: linking ten commonly used questionnaires to a common metric.

Oude Voshaar MAH; Vonkeman HE; Courvoisier D; Finckh A; Gossec L; Leung YY; Michaud K; Pinheiro G; Soriano E; Wulfraat N; Zink A; van de Laar MAFJ

doi:10.1007/s11136-018-2007-0

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Journal article

Towards standardized patient reported physical function outcome reporting: linking ten commonly used questionnaires to a common metric.

Oude Voshaar MAH Department of Psychology, Health and Technology, University of Twente, PO BOX 50 000, 7500 KA, Enschede, The Netherlands. A.H.Oudevoshaar@utwente.nl.
Vonkeman HE Department of Psychology, Health and Technology, University of Twente, PO BOX 50 000, 7500 KA, Enschede, The Netherlands.
Courvoisier D Division of Rheumatology, University Hospitals of Geneva, Geneva, Switzerland.
Finckh A Division of Rheumatology, University Hospitals of Geneva, Geneva, Switzerland.
Gossec L UPMC Univ Paris 06, GRC-UPMC 08, Paris, France.
Leung YY Department of Rheumatology and Immunology, Singapore General Hosptial, Singapore, Singapore.
Michaud K The National Databank for Rheumatic Diseases, Wichita, KS and University of Nebraska Medical Center, Omaha, NE, USA.
Pinheiro G Discipline of Rheumatology, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil.
Soriano E Rheumatology Unit, Internal Medical Services, Hospital Italiano de Buenos Aires, and Instituto Universitario Hospital Italiano de Buenos Aires, Buenos Aires, Argentina.
Wulfraat N Wilhelmina Children's Hospital, Utrecht, The Netherlands.
Zink A German Rheumatism Research Centre, Epidemiology Unit, and Rheumatology and Clinical Immunology, Charité University Medicine Berlin, Berlin, Germany.
van de Laar MAFJ Department of Psychology, Health and Technology, University of Twente, PO BOX 50 000, 7500 KA, Enschede, The Netherlands.

2018-10-15

Published in:

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. - 2019

Outcome Assessment, Health Care

Patient Reported Outcome Measures

English OBJECTIVES
Outcomes obtained using different physical function patient reported outcome measures (PROMs) are difficult to compare. To facilitate standardization of physical function outcome measurement and reporting we developed an item response theory (IRT) based standardized physical function score metric for ten commonly used physical function PROMs.

METHODS
Data of a total of 16,386 respondents from representative cohorts of patients with rheumatic diseases as well as the Dutch general population were used to map the items of ten commonly used physical function PROMs on a continuous latent physical function variable. The resulting IRT based common metric was cross-validated in an independent dataset of 243 patients with gout, osteoarthritis or polymyalgia in which four of the linked PROMs were administered.

RESULTS
Our analyses supported that all 97 items of the ten included PROMs relate to a single underlying physical function variable and that responses to each item could be described by the generalized partial credit IRT model. In the cross-validation analyses we found congruent mean scores for four different PROMs when the IRT based scoring procedures were used.

CONCLUSIONS
We showed that the standardized physical function score metric developed in this study can be used to facilitate standardized reporting of physical function outcomes for ten commonly used make physical function PROMs.

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