![[Family members' experiences of caring for persons with dementia and outreach counseling--an interpretative phenomenological study].](/static/images/no-image.png)
Journal article
[Family members' experiences of caring for persons with dementia and outreach counseling--an interpretative phenomenological study].
- Vögeli S 1 Institut für Pflegewissenschaft, Universität Basel, Schweiz.
- Frei IA 1 Institut für Pflegewissenschaft, Universität Basel, Schweiz.
- Spichiger E 1 Institut für Pflegewissenschaft, Universität Basel, Schweiz.
- 2016-03-15
Published in:
- Pflege. - 2016
Beratung
Demenz
Pflegende Angehörige
counseling
dementia
family caregiver
qualitative Forschung
qualitative research
Adult
Aged
Aged, 80 and over
Alzheimer Disease
Caregivers
Communication
Community-Institutional Relations
Cost of Illness
Counseling
Female
Health Services Needs and Demand
Home Nursing
Humans
Interview, Psychological
Male
Middle Aged
Qualitative Research
Social Support
Switzerland
English
BACKGROUND
Almost two-thirds of the 110,000 people living with dementia in Switzerland receive home care from family members. Outreach counselling can reduce the burden for family caregivers and delay nursing home placement. However, little is known of how this works and how caregivers experience the counselling. The Canton of Aargau Alzheimer's Association has been conducting a pilot project to demonstrate the necessity, effectiveness and practicability of outreach counselling in (their canton).
AIM
As a part of the evaluation of the project this study explored how family members experience the process of caring for a relative with dementia and outreach counselling.
METHOD
Interpretive phenomenology–a qualitative approach–was used to analyse data from interviews with twelve family caregivers.
RESULTS
Most family members felt supported in caregiving by outreach counselling. Three aspects of the counselling were especially important to the participants: being understood and taken seriously by the counsellor; receiving answers to their most pressing questions concerning the illness and being supported when difficult decision had to be taken; regaining personal time and learning how to better interact with the person with dementia. Two participants would have wished for more help by the counsellor.
CONCLUSIONS
To meet the needs of the family members, consultants should have sufficient experience in dementia patient care and should be strongly networked across the local health and welfare system. This study shows that family members can experience outreach counselling as a great support in their caregiving roles.
Almost two-thirds of the 110,000 people living with dementia in Switzerland receive home care from family members. Outreach counselling can reduce the burden for family caregivers and delay nursing home placement. However, little is known of how this works and how caregivers experience the counselling. The Canton of Aargau Alzheimer's Association has been conducting a pilot project to demonstrate the necessity, effectiveness and practicability of outreach counselling in (their canton).
AIM
As a part of the evaluation of the project this study explored how family members experience the process of caring for a relative with dementia and outreach counselling.
METHOD
Interpretive phenomenology–a qualitative approach–was used to analyse data from interviews with twelve family caregivers.
RESULTS
Most family members felt supported in caregiving by outreach counselling. Three aspects of the counselling were especially important to the participants: being understood and taken seriously by the counsellor; receiving answers to their most pressing questions concerning the illness and being supported when difficult decision had to be taken; regaining personal time and learning how to better interact with the person with dementia. Two participants would have wished for more help by the counsellor.
CONCLUSIONS
To meet the needs of the family members, consultants should have sufficient experience in dementia patient care and should be strongly networked across the local health and welfare system. This study shows that family members can experience outreach counselling as a great support in their caregiving roles.
- Language
-
- English
- Open access status
- closed
- Identifiers
-
- DOI 10.1024/1012-5302/a000476
- PMID 26974280
- Persistent URL
- https://sonar.ch/global/documents/263433
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