Journal article
Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study.
- Iglesias K School of Health Sciences (HEdS-FR), University of Applied Sciences and Arts of Western Switzerland (HES-SO), Route des Arsenaux 16a, 1700, Fribourg, Switzerland. katia.iglesias@hefr.ch.
- De Geest S Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland. sabina.degeest@unibas.ch.
- Berben L Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
- Dobbels F Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
- Denhaerynk K Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
- Russell LC School of Nursing and Health Studies, University of Missouri-Kansas City, Kansas City, MO, USA.
- Helmy R Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
- Peytremann-Bridevaux I Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
- 2020-03-05
Published in:
- BMC health services research. - 2020
Chronic care model
Heart transplantation
Language
Multi-center trial
PACIC short form
Transplant team
Adult
Aged
Australia
Canada
Chronic Disease
Cross-Sectional Studies
Factor Analysis, Statistical
Female
Heart Transplantation
Humans
Language
Male
Middle Aged
Reproducibility of Results
Surveys and Questionnaires
United Kingdom
United States
English
BACKGROUND
Transplant recipients are chronically ill patients, who require lifelong follow-up to manage co-morbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Model. The eleven-item self-report Patient Assessment of Chronic Illness Care (PACIC) scale assesses whether chronic care is congruent with the Chronic Care Model, yet its validity for heart transplant patients has not been tested.
METHODS
We tested the validity of the English version of the PACIC, and compared the similarity of the internal structure of the PACIC across English-speaking countries (USA, Canada, Australia and United Kingdom) and across six languages (French, German, Dutch, Spanish, Italian and Portuguese). This was done using data from the cross-sectional international BRIGHT study that included 1378 heart transplant patients from eleven countries across 4 continents. To test the validity of the instrument, confirmatory factor analyses to check the expected unidimensional internal structure, and relations to other variables, were performed.
RESULTS
Main analyses confirmed the validity of the English PACIC version for heart transplant patients. Exploratory analyses across English-speaking countries and languages also confirmed the single factorial dimension, except in Italian and Spanish.
CONCLUSION
This scale could help healthcare providers monitor level of chronic illness management and improve transplantation care.
TRIAL REGISTRATION
Clinicaltrials.gov ID: NCT01608477, first patient enrolled in March 2012, registered retrospectively: May 30, 2012.
Transplant recipients are chronically ill patients, who require lifelong follow-up to manage co-morbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Model. The eleven-item self-report Patient Assessment of Chronic Illness Care (PACIC) scale assesses whether chronic care is congruent with the Chronic Care Model, yet its validity for heart transplant patients has not been tested.
METHODS
We tested the validity of the English version of the PACIC, and compared the similarity of the internal structure of the PACIC across English-speaking countries (USA, Canada, Australia and United Kingdom) and across six languages (French, German, Dutch, Spanish, Italian and Portuguese). This was done using data from the cross-sectional international BRIGHT study that included 1378 heart transplant patients from eleven countries across 4 continents. To test the validity of the instrument, confirmatory factor analyses to check the expected unidimensional internal structure, and relations to other variables, were performed.
RESULTS
Main analyses confirmed the validity of the English PACIC version for heart transplant patients. Exploratory analyses across English-speaking countries and languages also confirmed the single factorial dimension, except in Italian and Spanish.
CONCLUSION
This scale could help healthcare providers monitor level of chronic illness management and improve transplantation care.
TRIAL REGISTRATION
Clinicaltrials.gov ID: NCT01608477, first patient enrolled in March 2012, registered retrospectively: May 30, 2012.
- Language
-
- English
- Open access status
- gold
- Identifiers
-
- DOI 10.1186/s12913-020-5003-3
- PMID 32126998
- Persistent URL
- https://sonar.ch/global/documents/92569
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